SMA News & Perspectives

Zolgensma Available Soon to Eligible SMA Type 1 Patients in England, Scotland

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being added to the...

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Muscles Controlling Eye Movements Not Affected by SMA & Never Give Up Searching for Your Advocates

SMA News Today’s multimedia associate, Price Wooldridge, discusses how adults with Spinal...

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#78: Discussing Switching Treatments, News Stories, and Recent Columns

In episode 78, host Kevin Schaefer talks with fellow SMA News Today contributor and Senior...

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The Challenges Of Life as a Teen And Young Adult With SMA & Being Denied Access to SMA Treatment

SMA News Today’s multimedia associate, Price Wooldridge, discusses the challenges of life as a...

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CHMP Favors EU Approval of Evrysdi as 1st Oral, At-home SMA Treatment & Discussing GI Issues

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Committee for Medicinal...

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Evrysdi Seen to Improve Survival, Motor Development of Infants with SMA Type 1

SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi improving survival and...

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Mother Raises 4 Adopted Girls From China With SMA, Chronic Illnesses

SMA News Today’s multimedia associate, Price Wooldridge, discusses a mother who has adopted and...

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Brain Involvement in SMA Type 1 Still Poorly Understood & Struggling to Personalize New Wheelchair

SMA News Today’s multimedia associate, Price Wooldridge, discusses why brain involvement in...

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Study Finds Varying Perspectives From Parents on Spinraza Therapy for Children

SMA News Today’s multimedia associate, Price Wooldridge, discusses the varying perspectives from...

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#77: Interview With Jeremy Camp, SMA Parent and Advocate

In episode 77, host Kevin Schaefer talks with Jeremy Camp from San Diego, California. Jeremy and...

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New SMN-boosting Molecule Shows Promise as Add-on Therapy & Rare Disease Day and New Forums Topics

SMA News Today’s multimedia associate, Price Wooldridge, discusses a new SMN-boosting molecule...

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Rare Case of SMA Linked With Myoclonic Epilepsy Detailed in Report

SMA News Today’s multimedia associate, Price Wooldridge, discusses a rare case of Spinal Muscular...

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Assistive Devices Should Be Standard in Managing SMA Type 1 & I’m Grateful for My Friends

SMA News Today’s multimedia associate, Price Wooldridge, discusses assistive devices which should...

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Quantitative MRI Is Sensitive Measure of Muscle Decline

SMA News Today’s multimedia associate, Price Wooldridge, discusses quantitative MRI imaging...

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Spinraza Improves Motor Function in Case of Teenager with Late-onset SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor...

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A ‘Miracle’: Spinraza Gives Boy a Chance to Grow Up & Life Is an Adventure, So Let’s Be Pioneers

SMA News Today’s multimedia associate, Price Wooldridge, discusses a “miracle” when Spinraza...

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#76: Discussing Treatment Updates, Vaccine Access, and Recent Columns

In episode 76, host Kevin Schaefer talks with fellow SMA News Today contributor DeAnn Runge. They...

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EMBRACE Trial Supports Spinraza’s Benefits in Broad Range of SMA Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses the EMBRACE Trial which...

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NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

SMA News Today’s multimedia associate, Price Wooldridge, discusses the National Organization for...

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Rare Disease Groups, Pharmas Join SMA Europe Push for Newborn Screening

SMA News Today’s multimedia associate, Price Wooldridge, discusses rare disease groups and...

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