SMA News & Perspectives

#118: Aging and SMA

In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge...

• 0
• 0
• 1 año

#117: Delphine Andrews and Kevin Davis, Interabled Couple

In episode 117, host Kevin Schaefer talks with Delphine Andrews and Kevin Davis from North...

• 0
• 0
• 1 año

#116: Shaniqua Granby, Law Professional With SMA

In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia....

• 0
• 0
• 1 año

#115: Jose Flores, Author and Motivational Speaker

In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a...

• 0
• 0
• 1 año

#114: Daniele Johnson, SMA Mom and Advocate

In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele...

• 0
• 0
• 1 año

#113: Dustin Swafford, Power Soccer Coach and Player

In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been...

• 0
• 0
• 1 año

#112: Lexi Villa, Social Media Influencer and Disability Advocate

In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works...

• 0
• 0
• 1 año

#111: Steven Verdile, Graphic Designer and Disabled Creative

In episode 111, host Kevin Schaefer talks with Steven Verdile, a graphic designer and media...

• 0
• 0
• 1 año

#110: Author Ben Mattlin Discusses Disability Pride Month

In episode 110, host Kevin Schaefer welcomes back to the podcast Ben Mattlin, an author and...

• 0
• 0
• 1 año

#109: 2022 Cure SMA Conference Recap

In episode 109, host Kevin Schaefer chats to several attendees from this year’s Cure SMA...

• 0
• 0
• 1 año

#108: A Mother Discusses the Approval of Evrysdi for Infants With SMA

In episode 108, host Kevin Schaefer talks with Logan Nantz from southern Indiana. Logan’s...

• 0
• 0
• 1 año

#107: A Conversation About Mental Health With LGBTQ+ and Disability Advocates

In episode 107, host Kevin Schaefer talks about mental health with LGBTQ+ and disability...

• 0
• 0
• 1 año

#106: A Conversation About Women’s Mental Health With Rare Disease and Disability Advocates

In episode 106, host Kevin Schaefer talks with a group of rare disease and disability advocates...

• 0
• 0
• 1 año

#105: A Conversation About Men’s Mental Health With Rare Disease and Disability Advocates

In episode 105, host Kevin Schaefer talks with rare disease and disability advocates about men’s...

• 0
• 0
• 1 año

#104: Interview With Ben Lou, Mathematics Student With SMA

In episode 104, host Kevin Schaefer talks with Ben Lou from San Diego, California. Ben is a...

• 0
• 0
• +1 año

#103: Discussion on Clinical Trials and Advocacy

In episode 103, host Kevin Schaefer talks with Stephen Mikita and Arya Singh, two individuals...

• 0
• 0
• +1 año

#102: Interview with Amber-Joi Watkins, SMA Mom and Advocate

In this episode, host Kevin Schaefer talks to Amber-Joi Watkins, an SMA mom and advocate....

• 0
• 0
• +1 año

Using Ultrasound May Help in SBMA Diagnosis & Dealing With Hospital Stays

SMA News Today’s multimedia associate, Price Wooldridge, discusses how men with spinal and bulbar...

• 0
• 0
• +1 año

#101: Interview with John Milligan, Asuragen Scientist & SMA Testing Expert

In this episode, host Kevin Schaefer talks with John Milligan from Austin, Texas. John is a...

• 0
• 0
• +1 año

SMA Screening Now Available to 87% of Newborns in US & Olympics Lacked Disability Representation

SMA News Today’s multimedia associate, Price Wooldridge, discusses how screening for spinal...

• 0
• 0
• +1 año