SMA News & Perspectives

Evrysdi for Infants Under 2 Months Old Given FDA Priority Review & Adapting to a New Wheelchair

SMA News Today’s multimedia associate, Price Wooldridge, discusses how the FDA is reviewing a...

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#100: Interview with Gabrielle Runyon, College Student with SMA and Disability Advocate

In episode 100, host Kevin Schaefer talks with Gabrielle Runyon (she/her) from Louisville,...

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SMA Linked to “Significant” Economic Burden

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a "significant" burden in...

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Therapy Effectively Treats SMA in Mice With Evident Symptoms & Tackling New Challenges With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how scientists gave a new,...

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#99: SMA and Motherhood

In episode 99, host Kevin Schaefer talks with two mothers from the SMA community. Trudy Citovic...

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Spinraza Plus Zolgensma Offers Little Extra Benefit in Type 1, Study Suggests

SMA News Today’s multimedia associate, Price Wooldridge, reads an article about how a small group...

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Spine Surgery Effective in SMA Type 1 Children & Mentally Preparing For Surgery

SMA News Today’s multimedia associate, Price Wooldridge, discusses how surgery to correct...

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Wheelchair Hockey Linked to Physical, Psychological Gains & Preserving Privacy When Living with SMA

SMA News Today’s multimedia associate, Price Wooldridge, reads an article about how men with...

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Scholar Rock Shares Design of Phase 3 Trial Testing of Apitegromab & Staying Organized With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock's global...

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#98: How to Manage Caregivers, a Chat with SMA Contributors DeAnn Runge and Michael Morale

In episode 98, host Kevin Schaefer talks with fellow SMA News Today contributors about hiring and...

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Spinraza May Restore Development of Motor Neurons & Why Finding Reliable SMA Carers Is Not Easy

SMA News Today’s multimedia associate, Price Wooldridge, discuses how a study in symptomatic SMA...

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Son With SMA Inspires Character on ‘Ordinary Joe’ TV Show & How SMA Can Shape Creativity

SMA News Today’s multimedia associate, Price Wooldridge reads an article about John Gluck, who...

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Evrysdi May Be Available in Early 2022 to Eligible UK Patients &Modifying a Wheelchair for SMA Needs

SMA News Today’s multimedia associate, Price Wooldridge, discusses how The National Institute for...

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Spinraza Improves Hand Dexterity in SMA Type 2 Children & Achieving Ambitions with SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improved fine...

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#97: Interview with Ali Ramos, a Social Worker and Disability and LGBTQ+ Activist.

In episode 97, host Kevin Schaefer talks with Ali Ramos (she/her) from Amarillo, Texas. Ali is a...

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Spinraza Delays Do Not Directly Affect Children in Italy & Making Goals with SMA

SMA News Today’s multimedia associate, Price Wooldridge, reads a news article on how the delays...

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Saliva Samples May Help Diagnose SMA & Moving Into a New Home with SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study showed for the...

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Poor Spinraza Adherence Leads to More Illness, Healthcare Costs & December Can Be Bittersweet

SMA News Today’s multimedia associate, Price Wooldridge, discusses how not having Spinraza...

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Treatment Delays May Be Less Important Than Family Support & Cherishing Togetherness During Holidays

SMA News Today’s multimedia associate, Price Wooldridge, discusses how delays of Spinraza...

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Phase 3 Trial of Apitegromab on Track for This Year & Managing Technological Issues With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock plans to initiate...

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