SMA News & Perspectives

Neurofilaments and Nerve-muscle Test Show SMA Severity & SMA Adults Struggle to Access Evrysdi

SMA News Today’s multimedia associate, Price Wooldridge, discusses an article about how blood...

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#96: Chat with SMA Columnist Halsey Blocher and her Mother & Caregiver, Heather Dye

In this episode, host Kevin Schaefer talks with Halsey Blocher and Heather Dye from Fort Wayne,...

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Novartis Applauds Move to Reimburse Families for Zolgensma & Making Connections with SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Novartis Pharmaceuticals...

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Acute Liver Failure Warning Added to Zolgensma Label & Time Management and SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how the U.S. FDA has added...

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Oral SMA Therapy Is Ideal and Aids Motor Skills and Breathing & Why No Changes in SMA is Good

SMA News Today’s multimedia associate, Price Wooldridge, discusses how better/stable motor...

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TXA Reduces Blood Loss During Scoliosis Surgery & Taking A Break For Emotional Wellness

SMA News Today’s multimedia associate, Price Wooldridge discusses how a recent study found that...

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#95: Interview with the SMA Creatives Behind "Spaces" Music Video

In episode 95, host Kevin Schaefer talks with the creators of the new song “Spaces.” Done in...

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Weak Trunk Muscles And Spine Problems Need Early Attention in SMA & The Human Side of the Internet

SMA News Today’s multimedia associate Price Wooldridge, discusses an article on how spinal...

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Clinical Trial to Test Antibody Use With Evrysdi & Thanksgiving Challenges

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Roche and Genentech will...

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Organization Aims to Make Planes Wheelchair-Accessible & Dealing with Accessibility Issues at Home

SMA News Today’s multimedia associate, Price Wooldridge, discusses how All Wheels Up recently...

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New Spinraza Delivery Technique for Patients & How To Refer to Someone With a Disability

SMA News Today’s multimedia associate, Price Wooldridge, discusses an article about how...

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#94: Interview With Pamela K. Muhammad, Author and Entrepreneur With SMA

In episode 94, host Kevin Schaefer talks with Pamela K. Muhammad from Monroe, Louisiana. Pamela...

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Anxiety and Depression Common Among School-Age SMA Patients in China & Facing SMA Challenges

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study in China suggests...

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Belgian Newborn Screening Pilot for SMA Becomes Official & Getting Through Physical Therapy with SMA

SMA News Today’s multimedia associate, Price Wooldridge discusses how a pilot of newborn...

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SMA Doesn't Stop Teen From Pursuing Academic Dreams & How To Make A More Accessible World

SMA News Today’s multimedia associate, Price Wooldridge, shares the story of Ben Lou, an...

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Cure SMA Advocates for Better Wheelchair Storage for Air Travel & SMA Issues Can Be Overwhelming

SMA News Today’s multimedia associate, Price Wooldridge, discusses how in an open letter to a...

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#93: Interview With Garrett Lerner, Co-creator and Executive Producer of NBC Series “Ordinary Joe”

In episode 93, host Kevin Schaefer talks with Garrett Lerner from Los Angeles, California....

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Canadian Agency Favors Zolgensma Only for Babies Up to 6 Months Old & Sometimes SMA Is Just Too Much

SMA News Today’s multimedia associate, Price Wooldridge, discusses an article about how a...

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Phase 3 Apitegromab Trial Planned for Non-ambulatory Types 2 And 3 & Latest Topics on Our Forums

SMA News Today’s multimedia associate, Price Wooldridge, discusses an article on how Scholar Rock...

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Neurofilament Blood Levels Likely to Predict Treatment Response in SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses a news article on how blood...

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