SMA News & Perspectives

Quality of Life Survey Aims to Help Inform SMA Community Needs & Situations That Could’ve Gone Wrong

SMA News Today’s multimedia associate, Price Wooldridge, reads the SMA News Today article, “New...

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#92: Discussing Disability and Employment

In episode 92, host Kevin Schaefer talks with fellow SMA News Today contributors to discuss each...

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Pre-symptomatic Infants Retain Swallowing Ability in Evrysdi Trial

SMA News Today’s multimedia associate, Price Wooldridge, reads an article on how pre-symptomatic...

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Spinraza RESPOND Trial Enrolling Children Not Helped by Zolgensma

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy...

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Low Bone Density Puts SMA Children in China at Risk for Fractures & DeAnn Runge's Favorite Hobbies

SMA News Today’s multimedia associate, Price Wooldridge, discusses how low bone density puts...

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Certain Abilities Decline in SMA Children Unable to Walk & Gaming to Find Accessibility

SMA News Today’s multimedia associate, Price Wooldridge, discusses how certain abilities decline...

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#91: Blake Watson, Web Designer and Developer

In episode 91, host Kevin Schaefer talks with Blake Watson from Byram, Mississippi. Blake is a...

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Trial of Spinraza at High Dose for Patients Who Have Used Evrysdi & Dealing With Your Period

SMA News Today’s multimedia associate, Price Wooldridge, discusses a trial planned of Spinraza at...

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Blood NfL Levels May Mark SMA Severity, Therapy Efficacy in Very Young

SMA News Today’s multimedia associate, Price Wooldridge, discusses how blood neurofilament light...

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Variant in Androgen Receptor Might Be Useful in Treating SBMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses a variant of an androgen...

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Cure SMA And Cytokinetics Renew Joint Efforts to Raise Funds and Awareness

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Cure SMA and Cytokinetics...

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#90: Interview With Judy Heumann, Disability Rights Activist

In episode 90, host Kevin Schaefer talks with Judy Heumann, who’s originally from Brooklyn, New...

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SMA Caused by Mutation in ASAH1 Gene Reported in Romania

SMA News Today’s multimedia associate, Price Wooldridge, discusses a first-ever case in Romania...

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2 SMN2-targeting Therapies Work Better Than 1 in Mouse Model

SMA News Today’s multimedia associate, Price Wooldridge, discusses how, according to a mouse...

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Indigenous Groups in Canada May Have Highest Rate of SBMA in World

SMA News Today’s multimedia associate, Price Wooldridge, discusses indigenous groups in Canada...

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Mothers Want to Improve Children’s Quality of Life & Making Friends as an Adult With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how mothers of Spinal Muscular...

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#89: Interview with Carole St-Laurent, A Children’s Author With SMA

In episode 89, host Kevin Schaefer talks with Carole St-Laurent from Quebec, Rimouski. Carole is...

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$1M Raised for ‘SpawnTogether,’ Disabled Gamers Project & DeAnn's Jaco Robotic Arm

SMA News Today’s multimedia associate, Price Wooldridge, discusses how $1 million has been raised...

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Some SMA Patients Unable to Walk Unassisted May Have Trouble Chewing

SMA News Today’s multimedia associate, Price Wooldridge, discusses how some Spinal Muscular...

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Behind-the-Scenes of #31DaysofSMA

#InstagramLive​ here: https://www.instagram.com/tv/CTBDgwbBFm5/ Ally Macgregor chats with Kevin...

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